News straight from www.cff.org: The Cystic Fibrosis Foundation celebrates the FDA’s approval today (July 2nd) of the lumacaftor/ivacaftor combination drug (OrkambiTM) as an important advance for the cystic fibrosis community. Orkambi targets the underlying cause of the disease in people with two copies of the most common CF gene mutation. Click here to read more: CFF.ORG - Orkambi
This is amazing news that will help many CF people live more normal lives and have a longer life expectancy! As I'm writing this and doing my breathing treatments (the VEST and Pulmozyme), I am very much looking forward to the improvements of my lung function and less coughing!!!! It may be a while before it's prescribed to me, but now I know it is an option (if my insurance covers it).
Thank you to everyone who has participated in the development of this new drug and who has generously donated to their research efforts. Thank you to the people who keep tabs on me and let me know about CF in the news too. That is so nice of you! And most importantly, thanks be to God who has given me every breath so far.
Have a wonderful 4th of July everyone!
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