Winter Time

I recently had a doctors appointment which went well, however my breathing test results (pft) was down another 2%, which I'm not okay with! I've been doing my breathing treatments pretty much everyday, but apparently more exercise is necessary. Winter time is hard for me to exercise. I need to avoid gyms because they carry too many germs for me to be around.

Sunday will be my 29th birthday and Im very grateful to still be breathing on my own and be as healthy as I have been overall. Remember if you are facing a "timeline" given to you by science, its not in charge of your life!

If any one is interested, we still have our house and Camaro for sale. They would make an impressive Christmas gift for that special someone! Haha. Stay safe this Christmas season and enjoy time with family and friends. MERRY CHRISTMAS! Please don't forget the real meaning of Christmas.

Please Act Soon!

In January 2013, Congress is planning on cutting budgets that will affect many people including me that are dependent on medical research and advancements.

It's not just research that is threatened. These cuts will also affect the Food and Drug Administration, the agency that is responsible for the review and approval of new medicines. That could slow the review process for promising new CF drugs.

The good news is that Congress can still prevent these cuts, but they need hear from you.

The clock is ticking: there are only a few more opportunities for Congress to act before the cuts take effect. Tell Washington to protect these important programs and focus on reducing our nation's deficit without jeopardizing our efforts to add tomorrows.

Click here to learn more about how these cuts will affect people with CF

Thank you for speaking out. Your messages, along with those sent by thousands of other CF advocates across the country, make a difference in the mission to find a cure for cystic fibrosis, support access to quality, affordable care and raise awareness of CF.

There’s still more you can do if your fired up!

1. Sign up to receive Advocacy Updates.  

2. Visit the Take Action page to send messages on additional federal and state alerts.

3. Donate Today to support the efforts of the Cystic Fibrosis Foundation.

Very Busy Time

I can’t believe how fast time has been going by!  Thanks to everyone reminding me to post!

A couple weeks ago I went to the doctor and had a breathing test (PFT) and it came out at FEV1 90% again.  I think I can get it better than that, but I’ve been sick (sinuses, coughing, etc.) for a few weeks now.  A lot of it has to do with allergies too I’m guessing. I need to get up earlier and do my breathing treatments and walk!  I also had my vitamin levels checked and, like many women, I struggle with my D3 level.  Fortunately, by taking almost 10,000 units of D3 a day, I have brought my levels up from 2011’s summer score of 18 to now 24. I need even higher than 32 so I’ll keep trying!

A lot has been going on in the last few months.  We have moved and listed our house for sale with a realtor today.  Praying it sells soon close to the listing price since the realtor fee is so high. Also for sale is our 91’ Camaro RS. We don’t have room for it in the driveway at the new house.  : ( 

It’s interesting how my mind works and as if I don’t have enough already going on, I end up voluntarily adding more to the pile. I’ve been researching life insurance for the both of us (and I keep getting denied!), contemplating going back to school through a program online (this is a 6 year process so far), decided to sell the Camaro, held a yard sale at the old house, got the dog’s teeth cleaned, and other things that could have in reality waited.  I’m either full speed or sleeping…

So thankful the hubby has work again.  And this time local! It’s been 3 YEARS since he has had a steady carpentry job and could actually come home each night.  Praying and trusting it will last a long while.

Thank you for continued prayers and your friendship.  Get in touch with me if I haven’t seen you in a while.  I’d love to add you to the pile!  Sunday, the 16th, I’m singing at Cross Church if you are in the area (9AM & 10:45 Services – Blue Jeans welcomed and coffee and food are available while you’re there).  They have on the line up “Healer” by Kari Jobe.  She’s way better than me, but I’ll do what I can.  : )

Take care!

August....no way!

I cannot believe tomorrow is August! Things have been going well with some heavy coughing here and there.

I just recently returned from a girls trip in Texas. What a fun time! I learned a valuable lesson that you really can eat too much at one time. Too much Italian food and a car ride does not mix well with me. Tee hee.... On top of that fun, Luke and I closed on a house and are moving as well as putting up a new fence and moving a ton of dirt in the back yard to help with run off from the corn fields. Thanks to everyone who has helped us in some way. We appreciate you and your time very much. Thank you to those who drove a long way to help as well!

Anyone who knows someone looking for a nice 3 bd home with a privacy fence and over sized 2 car garage in town, send them my way! We are already motivated sellers! : )

June Update

Picture aquired from www.cff.org

Hello...it's been a while. Life has been busy. I'm sure you can all relate! Good things have been happening these past few months. I've felt pretty good despite the heat and allergies. Recently I received some good medical news...
 
"Vertex Pharmaceuticals announced positive final results from a Phase 2 combination study of Kalydeco and a potential cystic fibrosis drug called VX-809.

Cystic fibrosis patients with two copies of the most common mutation, Delta F508 (that's what Jen has), showed significant improvements in lung function while taking the combination therapy.

Based on this data, Vertex plans to begin a pivotal study of the combination treatment in those with two copies of Delta F508 in early 2013."
 
That's very exciting for me and hundreds of others. Thank you for all your continued thoughts and prayers. I promise you it is making a difference. 

On a side note: If you are looking for a pick me up, look for God in the details of your life and then you will be satisfied. I've had some amazing circumstances happen over the last 3 months that only God could have conducted. I hope you can look back and say the same. One of the things my church family believes is to simply "pray and obey".  If you have a personal relationship with Jesus you will see results! Don't diss it until you've given it a try. : )