Thursday, May 10, 2012

Good News for CF!

Recently I was sent information from the Cystic Fibrosis Foundation (www.cff.org) about a clinical trial they are conducting that is related to the two CF  genes I have (Delta F508). Currently, scientists are in Phase 2 of their study on the drugs Kalydeco and Vx-809.  So far it is showing promising Interim results!  The drug combo is demonstrating a significant improvement in lung function in people with the two copies of the gene.  Praise God!  This is such a huge thing.  It literally makes me all teary eyed when I think about it! 

I just wanted to share that with you all because it’s a really big deal for people with CF, especially the people with the F508 genes!  Monday is my doctor appointment so I will find out how my lungs are functioning and probably my vitamin levels too.  I hope the results are good.  : )