My meeting was scheduled very quickly with Representative Rodney Davis. In fact, it was the day after my last post! He came to town and I met with him and an assistant of his privately. I was very appreciative of his time and that he didn't rush me or make me feel like I was "just another person". He was supportive of CF research and was already a member of the Rare Disease Congressional Caucus. He also said that he will join the Cystic Fibrosis Caucus as well. Thank you Mr. Davis for your time and for promoting Cystic Fibrosis awareness. It is greatly appreciated.
If you are interested in being an advocate for Cystic Fibrosis, here is a link that will give you basic steps on how to get the word out about the importance of CF research and support that is needed - CF Advocate . Remember, only about 30,000 people in the United States have been diagnosed with Cystic Fibrosis and 70,000 worldwide! CF'ers like me need your help, so please consider it.
I appreciate everyone who supports me and other CF'ers no matter the way you show your support (prayers, advocacy, monetary donations, cards, emails, etc.). It's all very much appreciated and a promise that I will get to live longer days which will include more healthy breaths.
To view Jen's full blog and/or to contact: Jen's Breath of Life